“This disease has devastated our family now and in generations past. We want to end this now for our children and their future.”
It started with my father-in-law who had the disease. He passed away from it.
My husband is now diagnosed with the disease (early onset). It was his worst nightmare coming true. He was forced to retire five years ago. After a bout of depression, we decided to try to make a difference. I got him involved with Anna Nelson at the Norwalk regional office. We got involved with Walk to End Alzheimer’s; were asked to be on the early onset advisory committee with the National organization; helped Scott develop his “Alzi Animals” that he paints, decorates and sells for Alzheimer’s and uses them as a teaching/educational tool in the schools with youth and graduate teaching students. We became active with the Connecticut advisory group and then the National conference in Washington, DC. There we go on the hill and ask for funding for research, etc. We also got involved nationally as my husband was on the National Board of Directors. I attended almost all of the meetings each year. I am in the process of developing some jewelry for the organization to sell. I will continue to stay involved, helping educate and find a cure for this devastating disease.